Waiting Once Again
Afton has recovered from her surgery well and overall has had a good week. She is in a great mood and just charming her doctors, therapists, and of course her nanny. Things are pretty low key around here since we have had a few illnesses around the house. So far Afton hasn’t gotten sick but we aren’t in the clear yet.
Afton had to see the doctor today because her stomach where the surgical tube is located is pretty infected. He cleaned it well and decided to put her on an antibiotic. Turns out that Afton’s grandma has strep throat and Afton was with her all day Saturday. So, they have now extended her antibiotics to take care of any potential strep throat as well. Let’s just hope that Afton continues to feel good through it all.
We also learned today that UNOS accepted the proposal from her liver doctor to have a higher score on the transplant list. Her new score could potentially get her another liver. Before this her score was so low that there wasn’t really any potential. So, we are mentally preparing for the call and waiting once again.
All of this comes with mixed feelings. On one hand we just want to leave Afton alone and let her enjoy life since she is feeling so good right now. On the other hand, maybe it is a blessing that she is so happy and healthy while she waits for a liver. We have seen first hand that is not the norm for most kids experiencing liver failure.
In the end, whatever is going to happen is really out of our control and we’re just taking things as they come.
